Search

Nine-year-old Norfolk boy urgently needs £60,000 operation - can you help?

Just4Children is fundraising for Ben Taylor's operation. Picture: Just4Children

Just4Children is fundraising for Ben Taylor's operation. Picture: Just4Children

Archant

A nine-year-old boy needs a £60,000 life-changing operation to help him lead a better life.

Laurence and Belinda Taylor, Ben and his brother, Dylan, five. Pictures: David BaleLaurence and Belinda Taylor, Ben and his brother, Dylan, five. Pictures: David Bale

Ben Taylor, from Lime Grove, Sheringham, has Spastic Diplegia Cerebral Palsy and is a full-time wheelchair user.

As he grows the muscles in his legs become tighter, causing discomfort and muscle spasms, hindering his mobility and independence.

The operation, called SDR (Selective Dorsal Rhizotomy), and post-op physiotherapy and rehabilitation, would give Ben the chance to lead a more comfortable and dignified life.

His father Laurence Taylor, 44, who works at InTouch Systems in Norwich, said: “Ben has been accepted for the SDR operation at Great Ormond Street Hospital (GOSH).

“This will significantly improve his quality of life by removing the spasticity and therefore helping to manage the discomfort he lives with on a daily basis.

“It will increase his mobility and he will be able to perform the daily activities most of us take for granted, but it is not available on the NHS.

“If he had the operation, it would be much easier for him to go to the toilet and shower.

You may also want to watch:

“It would also reduce the number of operations he'll need in the future.

“His legs are crossed, so you can imagine how hard it is to put a pair of jeans on.”

Ideally, they want Ben to have the operation before he's 10 in August.

Mum Belinda Taylor, 44, who works as a teaching assistant at Sheringham Primary, said: “We have tried everything we can and this is the last option, really.”

Ben, who attends Sheringham Primary School, and his identical twin Alex were born prematurely at 29 weeks in Bolton.

Alex passed away after four days, but Ben continued to fight and he was diagnosed with Spastic Diplegia Cerebral Palsy, aged two.

While Ben is eligible for the operation, it will not be funded by the NHS, and costs £35,000.

The family will also need to self-fund a minimum of two years intensive physiotherapy, and any equipment required for his rehabilitation, which will be around £25,000. The family is being supported by the Just4Children charity.

If you can help them raise the £60,000 needed, visit https://www.justgiving.com/campaign/abetterlifeforben

Most Read

Most Read

Latest from the North Norfolk News

Hot Jobs

Show Job Lists