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Holt family whose daughter has a rare skin condition presented with certificate for raising £50,000

PUBLISHED: 15:10 15 July 2017 | UPDATED: 15:10 15 July 2017

The Pearson family fundraising. L-R, Daisy, Michael, Joseph and Veronica. Picture: Supplied by Veronica Pearson

The Pearson family fundraising. L-R, Daisy, Michael, Joseph and Veronica. Picture: Supplied by Veronica Pearson

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Little Daisy Pearson was just three months old when painful blisters started to inexplicably appear on her skin.

Daisy Pearson. Picture: KAREN BETHELL Daisy Pearson. Picture: KAREN BETHELL

Allergies and minor skin conditions were thought to be the cause, but the blistering continued.

After several trips to doctors and hospitals, the youngster from Holt was eventually diagnosed with Epidermolysis Bullosa (EB) - a rare genetic condition, which causes the skin to blister and shear at the slightest friction.

Her parents Michael, 43, and Veronica, 42, were put in touch with a nurse from DEBRA, the national charity that supports EB sufferers, and learnt how to deal with their daughter’s condition, tending to her blistered feet and dressing the raw skin.

Early on, they decided to raise money for the charity that had supported them and, whenever possible the family hosts fundraising activities, such as jumble sales, cake sales, tombolas and raffles, or runs charity stalls at events across the county.

Daisy Pearson as a two-year-old with her mum Veronica
. She is now 11 and the family has been presented with a certificate for raising £50,000 for charity. Daisy Pearson as a two-year-old with her mum Veronica . She is now 11 and the family has been presented with a certificate for raising £50,000 for charity.

Daisy is now 11 and they have just been awarded a certificate by DEBRA for raising a whopping £50,000.

Mrs Pearson, of Beresford Road, said: “We cannot really believe we have raised so much money, but we are not going to stop now. We never had a target.

“Daisy was born in 2005 and we started fundraising for the charity in 2007.

“We (our family including Daisy) have just been presented with a certificate from DEBRA for our fundraising because we have reached a total of £50,000. We are very proud of reaching this total by holding stalls, having car boot sales, etc.”

Daisy goes to Sheringham High School with her brother, Joseph, 15, and she sometimes struggles to walk as her feet are so blistered and sore.

But Mrs Pearson, a teaching assistant at Astley Primary School, near Briston, added: “She has just won a prize for 100pc attendance at school, which is a real achievement.

“Condition-wise, she’s still about the same. Her feet can get really poorly, but she battles on. She’s really determined and does not like any fuss. Her attitude is, ‘I can do it’, which is the key.”

The money they have raised has gone towards research into her condition, and they hope that, one day, they will find a cure or relief for Daisy and other EB sufferers.

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